Wednesday 26 March 2014

I'm on the go!

So I finally got my counts up and I'm moving on with my five days of chemo!  No more worrying!  It started Monday, and I spent the night in a hotel last night.  It was really cool checking into the front desk, because it turns out the lady that works there, reads my blog too.  It was a really awesome feeling hearing that, and I really appreciate all of my supporters.

Although as much I'm glad I am moving on with treatment, it doesn't make getting it any easier.  Yesterday I got a lumbar puncture, and the needle hit a nerve in my spine, and then later on I accidently pulled out my needle that the chemotherapy goes into and I spilled chemo everywhere, which sucked for everybody.  Today I just seem sad.  I guess I was getting used to not getting chemo, and being home for weeks at a time!  Now that I'm getting back into the swing of things, I'm getting the joint pain, the headaches, the tiredness and everything else that comes along with chemotherapy.  It bothers me, because when I when I wasn't getting treatment, I was worried something was wrong, and now that I am getting it, I miss home.  There is just no winning with me this week.  But I do have a good book series I've been reading, and hopefully the week will be over before I know it.  Tomorrow is a big day for me, so hopefully it all goes well :)

Monday 17 March 2014

delays delays delays

Every so often (every month or so) I have to go in to the hospital for five full days of chemo.  I am also supposed to get a lumbar puncture once a month, and take plenty of chemo pills every day.  That is what my treatment plan looks like right now. But I have not had my chemo pills for almost a month now, and I was due to go in for my five days of chemo (5 day stint, is what it's called) three weeks ago.  I haven't gotten any of my treatment because my body just isn't recovering.  I don't have enough white cells for them to give me chemo therapy, because I need white cells to heal.  This is very frustrating for me because the doctors tell me every time I see them, how important it is to take my medication.  Sure, chemo makes me feel like crap for a while, but in the long run I know it is important and will save my life.  So thinking about the long run of things, not taking chemo therapy when I'm due for it, makes me worry about going into relapse, and that is a very scary thought.  The only nice thing about not being on chemo for so long is my hair is growing, fast. I probably have half an inch of hair now!  I really hope that when I do finally get my treatment, my hair doesn't fall out again.